When asked about his wife Nicole, Brian told us that she is the most amazing person he has ever met. Since her diagnosis of a rare, incurable illness, he does his best to make her realise this for herself every single day.
When Nicole went to the doctors about her bad eyesight, she was told that she had a degenerative medical condition called Usher Syndrome. This causes gradual sight and hearing loss and there is no known cure. Ever since the diagnosis, her husband Brian has cared for her whilst juggling a full time job with the Civil Service. Although Nicole’s guidedog Lily and two daughters were a huge help, Brian’s caring responsibilities became overwhelming.
“I was really struggling to balance work and caring for my wife. My manager saw how upset I was and recommended getting in touch with the Charity. She said they provided something called a Carer’s Passport which could help both of us understand the type of support I needed. She was right.”
The Carer's Passport is a document we can provide carers and their line managers which highlights how the individual's responsibilities impact their work. When Brian received his, he no longer had to explain his personal situation in intricate detail within every new professional relationship.
We also provided Brian with a Carer’s Statement. This document outlines an individual’s caring responsibilities but is used for conversations with Health and Social Care Professionals.
“Having a Carer’s Statement gives me extra support outside work. It means I can make appointments for my wife instead of having to explain why she can’t do it herself. It’s been fantastic.”
Since receiving help from the Charity, Brian has made it his goal to reach out to other carers within our lifelong community. He has attended several charitable events to tell his story and continuously encourages others to come forward for help.
“My wife had a choice years ago to either sink or swim. She decided to swim. The Charity helped me support her by supporting me. I can’t thank them enough.”